Frequently Asked Questions about SEED Teen

You are invited to be in a research study being done by the Centers for Disease Control and Prevention (CDC) and the University of North Carolina at Chapel Hill (UNC). CDC is a federal agency that works to improve public health and safety. The study is called Study to Explore Early Development, Teen Follow-up Study (SEED Teen).

What is the purpose of the study?

This is a study on teen health and development. We want to better understand teenagers and their families with and without ASD and other developmental disabilities. Through SEED Teen we hope to learn more about teenagers’ parents or other caregivers’ health. We also hope to learn more about teenagers’

• Social development
• Health
• Health care needs
• Education needs
• Activities
• Family relationships

Who can participate?

Families who participated in the Study to Explore Early Development (SEED) during 2007 to 2011 are being asked to be part of SEED Teen. We are contacting families from four sites: Georgia, Maryland, North Carolina, and Pennsylvania.

We are only contacting families who previously consented for us to contact them to discuss future research.

We are enrolling families of children with and without ASD or other developmental disabilities. It is important that different types of families participate. This will help us understand the full range of health and developmental issues teenagers and their families face.

What will I be asked to do as part of this study?

As part of this study you are asked to complete several tasks. You can refuse any task and still take part in the study. The tasks include:

Complete two questionnaires about your child:

• The SEED Teen Health and Development Survey
• The Social Responsiveness Scale

These two forms should take about an hour total to fill out. We can help you fill out the forms over the phone if you want.

Why should I be in the study?

There is no personal benefit to you for taking part in the study. Your participation will help us better understand teen health and development. The study may help us learn more about ASD and other developmental disabilities. Results may lead to better services for teens with developmental disabilities and their families.

Is this going to cost me anything?

There are no costs to you associated with being in the study.

Will I receive anything?

To thank you for your participation, you will receive $30 if you complete the two questionnaires.